Grampian CareData

Barth Syndrome Trust


Provides information about Barth Syndrome


Phone: 01794 518785
Website: http://www.barthsyndrome.org.uk

Area Covered: Aberdeen / Aberdeenshire / Moray

Butterfly Trust


Support for people with cystic fibrosis and their families


Phone: 0131 445 5590
Email: info@butterflytrust.org.uk
Website: http://www.butterflytrust.org.uk/

Area Covered: Aberdeen / Aberdeenshire / Moray

CORPAL (Agenesis of the Corpus Callosum / Aicardi Syndrome)


A support group for parents, families and carers of people with ACC or Aicardi Syndrome


Email: info@corpal.org.uk
Website: http://www.corpal.org.uk

Area Covered: Aberdeen / Aberdeenshire / Moray

Cystic Fibrosis Trust


Information, advice and support for people affected by Cystic Fibrosis


Phone: 020 3795 1555
Email: enquiries@cysticfibrosis.org.uk
Website: http://www.cysticfibrosis.org.uk

Area Covered: Aberdeen / Aberdeenshire / Moray

DebRA


Supports people affected by Epidermolysis Bullosa (a genetic skin blistering condition)


Phone: 01344 771961
Email: debra@debra.org.uk
Website: http://www.debra.org.uk/

Area Covered: Aberdeen / Aberdeenshire / Moray

Downs Syndrome Scotland - Family Support


Support for parents of children with Down's Syndrome


Phone: 0131 442 8840
Email: info@dsscotland.org.uk
Website: http://www.dsscotland.org.uk

Area Covered: Aberdeen / Aberdeenshire / Moray

Downs Syndrome Scotland - Grampian Branch


Information and support for people affected by Down's Syndrome


Email: Grampian@dsscotland.org.uk
Website: http://www.dsscotland.org.uk

Area Covered: Aberdeen / Aberdeenshire / Moray

Dravet Syndrome UK


A national charity supporting families affected by Dravet Syndrome


Phone: 07874 866937
Email: info@dravet.org.uk
Website: http://www.dravet.org.uk/

Area Covered: Aberdeen / Aberdeenshire / Moray

Klinefelters Syndrome Association UK


Support and information for people affected by Klinefelter Syndrome


Phone: 0300 111 47 48
Email: WebAdmin@ksa-uk.net
Website: http://www.ksa-uk.net/

Area Covered: Aberdeen / Aberdeenshire / Moray

Muscular Dystrophy Campaign


Information and support for people affected by muscular dystrophy


Phone: 020 7803 4800
Email: info@musculardystrophyuk.org
Website: http://www.musculardystrophyuk.org/

Area Covered: Aberdeen / Aberdeenshire / Moray

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